I there received,
I climbed the rope to the boat of understanding.
While in the dark sea,
I slept, and not overwhelmed there,
dreamt: a star blazed in my womb.
I marveled at that light and grasped it,
and brought it up to the sun.
I laid hold on it, and will not let it go.
—Makeda, Queen of Sheba, translated by Jane Hirshfield
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Contents
Prologue 000
Part I
Redemption 000
Chapter 1 Along Came a Blackbird
000
Chapter 2 The Tyranny of Hope
000
Chapter 3 Rites of Passage
000
Part II
Fast Medicine
000
Chapter 4 Fast Medicine
000
Chapter 5 Inventing Lifesaving and Transforming Death 000
Chapter 6 My Father’s Open Heart
000
Part III
Ordeal 000
Chapter 7 Not Getting Better
000
Chapter 8 Dharma Sisters
000
Chapter 9 Broke-Down Palace
000
Chapter 10 White Water
000
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Part IV
Rebellion 000
Chapter 11 The Sorcerer’s Apprentice
000
Chapter 12 The Business of Lifesaving
000
Chapter 13 Deactivation 000
Part V
Acceptance 000
Chapter 14 The Art of Dying
000
Chapter 15 Afterward 000
Part VI
Grace 000
Chapter 16 Valerie Makes Up Her Mind
000
Chapter 17 Old Plum Tree Bent and Gnarled
000
Afterword: The Path to a Better Way of Death
000
A Map through the Labyrinth
000
Notes for a New Art of Dying
000
Notes 000
Author’s Note
000
Acknowledgments 000
Permissions and Credits
000
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Knocking on
Heaven’s Door
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Valerie Joy de la Harpe and Jeffrey Ernest Butler,
Rhodes University, Grahamstown, South Africa, 1946.
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Prologue
On an autumn day in 2007, while I was visiting from Cali-
fornia, my mother made a request I dreaded and longed to
fulfill. She’d just poured me a cup of tea from her Japanese tea-
pot shaped like a little pumpkin; beyond the kitchen window,
two cardinals splashed in her birdbath in the weak Connecticut
sunlight. Her white hair was gathered at the nape of her neck,
and her voice was low. She put a hand on my arm. “Please help
me get your father’s pacemaker turned off,” she said. I met her
eyes, and my heart knocked.
Directly above us, in what was once my parents’ shared bed-
room, my eighty-five-year-old father Jeffrey—a retired Wesleyan
University professor, stroke-shattered, going blind, and suffer-
ing from dementia—lay sleeping. Sewn into a hump of skin and
muscle below his right collarbone was the pacemaker that had
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2
katy butler
helped his heart outlive his brain. As small and shiny as a pocket
watch, it had kept his heart beating rhythmically for five years.
It blocked one path to a natural death.
After tea, I knew, my mother would help my father up from
his narrow bed with its mattress encased in waterproof plastic.
After taking him to the toilet, she’d change his diaper and lead
him tottering to the living room, where he’d pretend to read a
book of short stories by Joyce Carol Oates until the book fell
into his lap and he stared out the sliding glass window.
I don’t like describing what the thousand shocks of late old age
were doing to my father—and indirectly to my mother—without
telling you first that my parents loved each other and I loved them.
That my mother could stain a deck, sew a silk blouse from a photo
in Vogue, and make coq au vin with her own chicken stock. That
her photographs of Wesleyan authors had been published on book
jackets, and her paintings of South African fish in an ichthyolo-
gists’ handbook. That she thought of my father as her best friend.
And that my father never gave up easily on anything.
Born in South Africa’s Great Karoo Desert, he was a twenty-
one-year-old soldier in the South African Army when he lost his
left arm to a German shell in the hills