old man’s friend”
for its promise of an easy death, a doctor might well feel duty-
bound to prescribe antibiotics. If he collapsed and my mother
called 911, paramedics would do everything they could to revive
him as they rushed his gurney toward the emergency room.
With just a little more bad luck, my father might be wheeled
into an intensive care unit, where my mother and I—and even my
dying father—could become bystanders in a battle, fought over the
territory of his body, between the ancient reality of death and the
technological imperatives of modern medicine. It was not how we
wanted him to die, but our wishes might not mean much. Three-
quarters of Americans want to die at home, as their ancestors did,
but only a quarter of the elderly currently do. Two fifths of deaths
now take place in a hospital, an institution where only the desti-
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knocking on heaven’s door
5
tute and the homeless died before the dawn of the twentieth cen-
tury. Most of us say we don’t want to die “plugged into machines,”
but a fifth of American deaths now take place in intensive care,
where ten days of futile flailing can cost as much as $323,000. If
my mother and I did not veer from the pathway my father was trav-
eling, he might well draw his last breath in a room stripped of any
reminder of home or of the sacred, among doctors and nurses who
knew his blood counts and oxygen levels but barely knew his name.
Then again, the hospital might save his life and return him
home to suffer yet another final illness. And that I feared almost
as much.
I loved my father—even as he was, miserable, damaged, and
nearly incommunicado. I loved my mother and wanted her to
have at least a chance at a happy widowhood. I felt like my
father’s executioner, and that I had no choice.
I met my mother’s eyes and said yes.
I did not know the road we would travel, only that I’d made
a vow. In the six months that followed, I would learn much
about the implications of that vow and about the workings of
pacemakers and of human hearts, about law and medicine and
guilt, about money and morality. I would take on roles I never
imagined could be played by a loving daughter. I would watch
my father die laboriously with his pacemaker still ticking. After
his death, I would not rest until I understood better why the
most advanced medical care on earth, which saved my father’s
life at least once when he was a young man, succeeded at the
end mainly in prolonging his suffering.
Researching a magazine article and then this book, I would
discover something about the perverse economic incentives
within medicine—and the ignorance, fear, and hope within
our own family—that promoted maximum treatment. I would
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6
katy butler
contemplate the unintended consequences of medical technol-
ogy’s frighteningly successful war on natural death and its ban-
ishment of the “Good Death” our ancestors so prized. Armed
with that bitter wisdom, I would support my mother when she
reclaimed her moral authority, defied her doctors, refused a
potentially life-extending surgery, and faced her own death the
old-fashioned way: head on.
My mother and I often felt like outliers, but I know now that we
were not alone. Thanks to a cavalcade of relatively recent medi-
cal advances ranging from antibiotics and vaccines to dialysis,
911 systems, and airport defibrillators, elderly people now sur-
vive repeated health crises that once killed them. The “oldest
old” are the nation’s most rapidly growing age group. But death
is wily. Barred from bursting in like an armed man, it wages a
war of attrition. Eyesight dims, joints stiffen, heartbeats slow,
veins clog, lungs and bowels give out, muscles wither, kidneys
weaken, brains shrink. Half of Americans eighty-five or over
need help with at least one practical, life-sustaining