towel? Why is a misfolded one bad? She couldnât wrap her unschooled mind around the scienceâa baffling maze of amyloids, fibrils, and spongiform encephalopathyâbut she easily understood prions as tiny PAC-MANs munching countless infinitesimal holes in Jonahâs brain. The image was inadequate, but it didnât matter. The holes were killing her son. What else did anyone need to know? She reached down to rub his head, but refrained. Lately even that had become intolerable to him. The doctors said it would get worse. Then, worse still, it would stop. Thatâs when theyâd know. Thatâs when the brain would lose its war.
She fought to stop her tears. Can the waterworks, sister, she told herself. Be strong for your son. She pulled herself together, straightening up, wiping her eyes, and smoothing the pleats of her yellow blouse. As she pushed her hair off her face, she looked back up at the medical center behind her, all soaring steel and grand glass panels. So much science in there, so little help.
Thatâs what they mean by incurable.
âCome on, buddy boy,â she said as brightly as she could manage, âletâs go home.â
They started down the steps of the plaza. Jonah took them two at a time. He seemed to have recovered his mood.Dysesthesia ebbed and flowed, Sarah knew, and thank God for the ebbs. Though lately it seemed to be flowing higher, faster. Were the holes getting that much bigger? Were the prions that hungry? She fought back the thoughtâ No waterworks! âas she called out to her son, âBe careful, Jonah, those steps are steep. You donât want to trip andââ she caught herself. What? Hit his head? The idea was almost funny, considering everything. She smiled in spite of herself.
Sarah noticed a man at the bottom of the stairs. She saw immediately how sad he seemed, and how used to the sadness he looked.
But he brightened when he saw Jonah come clumping down the steps, taking the last five of them in a giant leap. âStuck the landing!â cried the man when Jonah touched down. This amused Sarah, until he added, âGood job, Jonah!â
She raced to the bottom of the stairs and demanded, âHow did you know my sonâs name?â
âWell, I must have just heard you use it.â¦â he said. Sarah felt foolish for a moment, until he added with a shy smile, âSarah Crandall.â
âWait, you know my name? No one said that.â
âI know. Iâll explain in a moment.â He offered his hand. âIâm Adam Ames.â She shook it because thatâs the polite thing to do.
Ames turned to Jonah. âIâm not gonna shake your hand, little man. I know how much that would hurt.â Sarah gasped. Ames turned back to her and looked her in the eye. She saw the sadness return. âWhat does he call it?â Ames asked.
âWh-what?â
âHis condition. Has he given it a name?â
âTheâ¦zizzles.â
Ames nodded his empathy. âZizzles. That makes sense. Mine called it the creepy-crawlies.â
âYours?â
âMy Dylan. That was at first. Later he justââ Ames cut himself off. âIâm getting ahead of myself,â he said. âCan I buy you a cup of coffee?â A nod to Jonah. âSome juice?â
His Dylan? âWill you tell me how you know me?â
âOf course,â said the handsome and somehow innately charming man. âI want to tell you.â He touched the back of her hand with his palm. âBelieve me, itâs worth sitting down for. Weâll just go across the street.â
Sarah looked at Jonah. âWhat do you say, buddy? Want some juice?â
Jonah seemed to give the question more consideration than it deserved, as if his brain were slow to process his thoughts. âI like juice,â he said at last. âJuice is good.â
They went to a Java Man opposite the medical center. Sarah and
Heidi Murkoff, Sharon Mazel